<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[Rare But Relentless Foundation]]></title><description><![CDATA[Rare But Relentless Foundation is a nonprofit organization focused on advancing research, education, and patient connections for overlooked rare diseases, specifically CIC-rearranged sarcoma and other ultra-rare sarcomas. The website will feature key pages such as Home, About Us, Our Mission, Research, and Get Involved, designed with a clean white background and bold black and yellow accents. The target audience includes patients, families, researchers, physicians, donors, and advocates in the rare-disease community. The foundation's mission and the founder's story will be shared to foster hope and credibility.]]></description><link>https://www.rarebutrelentless.org/blog</link><generator>RSS for Node</generator><lastBuildDate>Sat, 12 Sep 2026 13:06:41 GMT</lastBuildDate><atom:link href="https://www.rarebutrelentless.org/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Accelerating Research on Rare Sarcomas: A Call to Action]]></title><description><![CDATA[Rare sarcomas, a group of cancers that arise from connective tissues, represent a significant challenge in the field of oncology. These tumors, while less common than other cancer types, can be aggressive and difficult to treat. The urgency to accelerate research on rare sarcomas is paramount, as patients often face limited treatment options and poor prognoses. This blog post aims to shed light on the current state of research, highlight the challenges faced, and call for collective action to...]]></description><link>https://www.rarebutrelentless.org/post/accelerating-research-on-rare-sarcomas-a-call-to-action</link><guid isPermaLink="false">6a67f3b7388acffd1e3cfbc4</guid><pubDate>Tue, 28 Jul 2026 00:11:35 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab5a11_36c0ef99a0934b7a8b4b8a78677fc159~mv2.png/v1/fit/w_1000,h_576,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>zrfenster</dc:creator></item><item><title><![CDATA[Connecting Patients and Researchers in Rare Disease Advocacy]]></title><description><![CDATA[Rare diseases affect millions of people worldwide, yet they often remain underfunded and overlooked in medical research. The connection between patients and researchers is crucial in advocating for better treatments and understanding of these conditions. By fostering collaboration, we can bridge the gap between those who suffer from rare diseases and those who have the power to make a difference through research. Understanding Rare Diseases Rare diseases, defined as conditions that affect...]]></description><link>https://www.rarebutrelentless.org/post/connecting-patients-and-researchers-in-rare-disease-advocacy</link><guid isPermaLink="false">6a67f3b0b59210289e96f0e6</guid><pubDate>Tue, 28 Jul 2026 00:11:28 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab5a11_ed9f9d12719a4053a3899188a2b7a11a~mv2.png/v1/fit/w_1000,h_576,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>zrfenster</dc:creator></item><item><title><![CDATA[Marfan Syndrome: Bridging Gaps in Rare Disease Research]]></title><description><![CDATA[Marfan syndrome is a genetic disorder that affects the body's connective tissue, leading to a range of serious health issues. Despite its significant impact on individuals and families, it remains under-researched and underfunded compared to other conditions. This blog post aims to shed light on Marfan syndrome, its implications, and the urgent need for increased research and awareness. Understanding Marfan Syndrome What is Marfan Syndrome? Marfan syndrome is caused by a mutation in the FBN1...]]></description><link>https://www.rarebutrelentless.org/post/marfan-syndrome-bridging-gaps-in-rare-disease-research</link><guid isPermaLink="false">6a67f3ac388acffd1e3cfb96</guid><pubDate>Tue, 28 Jul 2026 00:11:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/ab5a11_849dbf4ce25e41028dec599654db24c7~mv2.png/v1/fit/w_1000,h_576,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>zrfenster</dc:creator></item></channel></rss>